A Parkinson's disease Health Literacy Initiative
Supporting • Educating • Empowering
Africans affected by Parkinson's disease.
Brought to you by Parkinson's Africa and IPDGC-Africa.
Sponsored by UCL Grand Challenges and Global Engagement offices.
More information below
Support • Educate • Empower
Parkinson's disease is the fastest growing neurological condition in the world, and the rate of increase in Africa is gradually rising. There is a general lack of awareness of Parkinson's disease across Africa, and many people across the continent misunderstand and/or are misinformed about the disease. Informational and educational materials, in local African languages and using culturally relevant and relatable visuals, are practically nonexistent; thereby, limiting an affected person's ability to make proper health decisions.
SEE Parkinson's is a Parkinson's disease health literacy initiative seeking to address the aforementioned issue by equipping Africans affected by Parkinson's disease with the Support, Education, and Empowerment needed to make informed and appropriate health decisions relating to Parkinson's disease. These resources - which will be created in English and translated into 11 different African languages - will include printed and digital educational leaflets, explainer animation videos, and informational/awareness videos. The 11 languages are: Arabic, Swahili, Yoruba, French, Twi, Luganda, Igbo, Somali, Pidgin English, Amharic, and Hausa.
You are invited to join us on World Parkinson's Day, 11 April 2021, as we will officially launch SEE Parkinson's.
Come and hear about the inspiration behind this initiative, its impact, and how you can be a part of it. We will also feature some of the World Parkinson's Day activities going on across Africa.
"Doors" will open 10 minutes early, so feel free to join early. Looking forward to seeing you there!
Seed Funding Fundraiser
Parkinson's Africa is registering for charity status! What started (over four years ago) as a simple search in google for Africans living with Parkinson's has blossomed into an actual organisation - one that is determined to positively impact the Parkinson's landscape across Africa.
We are asking for your support today because we need seed funding to help get us officially off the ground. The funds raised will go towards paying for administrative assistance, purchasing standard supplies and software, updating our website, creating a repository of educational materials, and creating/printing informational materials, brochures and flyers.
Will you support us?
Seven Reasons Stigma Campaign
Watch to find out why you should care
This fundraiser is closed. We were able to raise over C$11,000! Many thanks to all who gave. All funds raised went directly to the World Parkinson Program (WPP) charity for the provision of Parkinson's medications for Africans who are unable to afford them.
About the Seven Reasons Stigma Campaign
... because Parkinson's disease is hard enough on its own.
Together, we can reduce the added, but unnecessary,
burden of stigma associated with it.
"Sometimes coping with stigma surrounding the disorder is more difficult than living with any limitations imposed by the disorder itself."
- Chapter 4, Neurological Disorders: Public Health Challenges (WHO)
Seven Reasons is a campaign focused on empowering Africans affected by Parkinson's disease (PD) to overcome the stigma that is often associated with the illness. In addition to changing public perception towards people with Parkinson's, the campaign places specific emphasis on equipping the individuals impacted by the disease to rise above the stigma, regardless of public perception.
Much of the stigma surrounding Parkinson's in Africa comes from factors that can be influenced. We have structured this campaign to tackle three of those factors - misinformation, lack of access to proper care and treatment, and self-stigmatization.
Across various parts of Africa, many people with Parkinson's are believed to be cursed or possessed and, as a result, often choose (or are forced) to hide themselves from the general public. We believe that targeted education campaigns focused on teaching individuals and communities what Parkinson's is/is not, who can get it, how to treat it, etc. is a necessary first step in counteracting these misconceptions.
Access to Care/Treatment
Many of the Parkinson's symptoms that heighten a person's level of self-consciousness and cause embarrassment are treatable with medication and/or proper therapy. The problem, of course, is that many Africans affected by Parkinson's are unable to afford these treatments or therapies. This campaign has partnered with the World Parkinson's Program charity to raise funds for the provision of Parkinson's medication for those Africans who are unable to afford them.
According to the World Health Organization (WHO), "for stigmatization to be consistently effective, the stigmatized person must acquiesce to society's devaluation. When people with 'differentness' internalize society’s devaluation, they do not feel empowered to change the situation and the negative stereotypes become an accepted part of their concept of the disorder."
By highlighting inspiring stories of Africans impacted by Parkinson's, this campaign seeks to create an environment where that "differentness" becomes less of a factor.
We are calling on everyone to participate in this campaign. It doesn't matter if you have been diagnosed with PD or never heard of the illness before; a family member or a coworker of someone affected by PD; a neurologist or a baker! We need you to get involved with this campaign by clicking the button below.