Parkinson's disease can feel like a very lonely road to travel on, but we want you to know that you are not alone. We are constantly working to locate and partner with local Parkinson's support groups and organisations across Africa. Please see below for those we have been able to identify. If you know of an African Parkinson's support group or organisation that you believe should be (but is not) listed, please contact us at email@example.com, or through the "Contact" page.
OAUTHC PD Support Group (Ile-Ife)
Our "Understanding Parkinson's Disease" booklet will be released, starting in December 2021, in English and several African languages including Swahili, Arabic, Yoruba, Pidgin, French, and many more.
These materials, sponsored by UCL Grand Challenges and UCL Global Engagement Office, were put together by Parkinson's Africa and the International Parkinson's Disease Genomics Consortium - Africa (IPDGC-Africa) as part of the S.E.E. Parkinson's Health Literacy Initiative. The goal of the initiative is to increase the knowledge of Parkinson's across Africa by improving access to Parkinson's disease information, particularly for non-native English speakers. To that effect, these materials have been translated into several different African languages, with more translations in the works.
Print & Digital Educational Materials
Audio & Video Educational Materials
Additional Parkinson's resources will be uploaded in December 2021.
The following documents (pdf) give more details of some of the more common Parkinson's symptoms. They are currently available in English and Swahili and were put together by Dr. Natasha Fothergill-Misbah.