Research Studies

Who we are

Parkinson's Africa is a non-profit organisation that is dedicated to empowering Africans affected by Parkinson's disease (PD). We are committed to improving the knowledge and understanding of PD and to supporting Africans impacted by it and determined to positively impact the PD landscape across Africa.

Why we exist​

Stigma

Stigma is a heavy, but unnecessary, burden that is often caused by misinformation, lack of awareness, and deeply rooted cultural beliefs.  I"n parts of Africa, some individuals (and families) affected by PD are often isolated from society as they are thought to be cursed, bewitched, or demon possessed. For many, coping with these ramifications of stigma can be “more difficult than living with any limitations imposed by the disorder itself.” (Chapter 4, Neurological Disorders: Public Health Challenges (WHO)).

Underrepresentation

African voices remain a grossly underrepresented minority in the conversations and activities that influence the science and the study of PD. Scientific literature reviewing PD in Africa are relatively few and far between; and the majority of PD research studies and clinical trials have been conducted by Western scientists, on Western patients, and in Western regions.

It is indisputable that a more holistic picture of PD is long overdue. With PD being the fastest growing neurological disorder in the world, the time for more global representation is now.

Access to proper healthcare

Socioeconomic barriers limit the ability of many patients across Africa to access the healthcare they require; making it extremely difficult to manage their illness and negatively impacting their quality of life. Even for individuals with access to medical care and treatment options, the management of PD symptoms is a daunting task. Without this access, it comes fairly close to an impossible task.

Parkinson's Africa

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